Thank You & GoodBye 2016
2016 has been a very interesting year. For one, She Blossoms’ journey as a Lupus Awareness Movement was born. It’s been an awesome learning curve, and we expect more adventures in the days to come. For this, we have so much to be grateful for.
It would only be fair to look back and mention some of the highlights.
Back in April, hosted by Anne Eboso and her amazing team of miracle workers, the very first Lupus Awareness campaign under She Blossoms culminated with a She Blossoms event at PAWA254. Although the event was envisioned to raise funds for Juliet Maruru’s medical care in India, it was also an experiment on how to marry the Arts with Lupus Awareness.
She Blossoms 1 on April 23rd at PAWA254 was fun and alive, featuring music, poetry, reading, food, drink and conversation about Lupus with Lupus Foundation of Kenya directors More Argwings Kodhek & Wemo Kitawa, as well as Guest Doctor Etau Ekwom.
It was a wonderful celebration of life, and it set the tone for the She Blossoms Lupus Awareness Movement.
Things are often difficult for persons living with Lupus. Getting a proper diagnosis, getting consistent and correct medical care and being able to afford it, coping with the emotional and psychological stress of living with a chronic illness, balancing illness and work or family obligations – these can be incredibly difficult for both the patient and their family and loved ones to cope with.
At She Blossoms, we decided to handle Lupus Awareness by actively talking about Lupus online, but also by creating opportunities to celebrate persons living with Chronic illness for their courage and strength in dealing with every day life.
Shortly after the She Blossoms 1 Event, She Blossoms joined hands with the Lupus Foundation of Kenya for the POP WALK at the Nairobi Safari Walk on May 10 to mark World Lupus Day. In keeping with our decided direction, the walk was designed to bring relaxation and a little bit of fun to the participants while raising awareness of Lupus with the colours.
In July, She Blossoms was pleased to be included in the program for the 2016 Health Festival Kenya. This made it possible for us to not only have a panel discussion in partnership with the Lupus Foundation of Kenya but to also hold an all day information booth for queries and one on one conversation about Lupus in Kenya.
In late October, She Blossoms Second Edition was born. Curated by Kibali Muriithi of Lahani at 910 James Gichuru Road, the event which is expected to be held once in every two months, brings music, poetry, literature and art to celebrate, encourage and entertain chronic illness warriors. Keep an eye here and on our Facebook Page as well as Twitter for announcements on the next date for the She Blossoms for Lupus event.
We had to have one more Lupus adventure, and we chose Karura Forest as our venue.
This time, our adventure was dedicated to a beautiful young lady called Caroline Mumbua who is fighting Lupus and Kidney Disease. Caroline is stuck in India, having gone there to seek emergency medical care and accruing medical bills above 3 Million Kenya Shillings. These bills far exceeded the more than 2 million Kenya Shillings her family had spent in Kenyan hospitals and what they had expected to spend in India. Caroline is fighting hard to survive. She is yet to receive a much needed kidney transplant, but her family’s priority has changed to clearing the bills and bring her home. Can you help?
2016 has been a tough year for some of us, but it’s also been a wonderful year that has shown us how strong and resilient we are.
There’s just a few of us at She Blossoms. But we strongly believe that in adding beauty to the world, even for just one person, we are making things a lot better, at least in our corner of the world. We’d love it if you could join us. We need volunteers in different capacities. Even two hours of your time a week could make a huge change in the life of a person living with Lupus. We need skills, from accounting to psychological counselling. So contact us if you would like to help. firstname.lastname@example.org
Lupus is a cruel, mysterious disease. To fight, and to survive it, we need to hold on to faith, hope and love. Sometimes some of us need to fall into the deep rest, not because they have given up, but just because it is time for them to rest. We remember them, and we keep fighting so their battle does not have to be in vain.
So here goes. Thank you and good bye, 2016.